The One With The Halo (Finally!)

I'm officially in The Halo. DumdumDUM!

This sucks. (That's what the sticker says)

I've been home for roughly two weeks and in The Halo for about four...I dunno, I've kinda lost track of time.
I went into the hospital on the 11th of September and had my first op the next day. That first op was only about 20 - 30 mins and was to put the ring around my head (ie drill it into my skull (!))

I was then attached to the bed with a piece of string being pulled down by weights. This was to lift my skull off my neck. That was pretty tough as every time I had to go to the bathroom my mum had to slide a cardboard potty underneath me :{ (eek!)

The first night after surgery, I made things very hard for myself by projectile vomiting whilst flat on my back <:O not the easiest thing to do whilst aiming at a sick bowl...
However, after that things got better and as the week progressed I became used to it and enjoyed recieving visits from my family and friends.

My Aunt Clare (who we all call Aunt Minx) would bring in incredible brownies. I swear, before the brownies, I was living a highly healthy lifestyle on fruit and water only (this was mainly because the hospital food was atrocious. On my first night in hospital, not knowing any better, I ordered chicken nuggets and chips...now the chips weren't that bad but the nuggets? Eugghh! I have never tasted anything so repulsive.) Either way, after Minx descended these God blessed brownies on me, those are pretty much all I lived on.

Anyway, I continued to have lots of visitors from family etc., one being very memorable and from my Aunt Em and cousin Floss. I was feeling better than I had in days and when Floss and I were fiddling with my spankin' brand new iPad (more on that later), an alarm started blaring like a foghorn.
A flock of nurses came flooding in and Aunt Em emerged from the bathroom, pink in the face. It turned out that she had mistaken the emergency cord for the flush! I don't think I've ever laughed so hard in my life.

LOL.

One of the best days was recieving a iPad from my Uncle Pikey in France where he is working at the mo. As I ripped off the wrapping paper all I could see was a white box. I looked up to see what all the fuss was about and was greeted with manic smiles..I'd obviously missed the Apple logo on the sides. When I figured this out I pretty much started hyperventilating...it was a good day

Eventually the 19th rolled around, This was the big one. The one where the surgeons would be attaching my skull to my neck. Eek!
I don't really remember the whole going-down-to-theatre, so I can't really tell you to much about it. I very vaugley remember being wheeled down and then waking up in the High Dependency unit full of screaming babies.
When I woke up the next day, we were back in a private room and so pleased to be.
The next few days were pretty tough as, although I was no longer strapped to the bed, I had to get used to having a cage around my face and a jacket around my chest. Here, I'll show you...

Regina George in 'Mean Girls' rocks a Halo.

 So. That's my journey so far. Hey, I've still got a long way to go but I'm living one day at a time. How cheesy is that?!

Ciao!

EH xx

The One With Yet Another Date...

 

We have yet another date in the diary for surgery. Phew!

Lets just hope that this one isn't cancelled because the surgeon broke his fingernail or the hospital was bombed...

We got told yesterday on the way back from the 'Sea Cow' in East Dulwich and funnily enough, my mother and I were just discussing whether or not I shoud go back to school if the date is a month later, when my mums phone started ringing.

I remember her saying that she didn't recognize the number and my stomache contracting slightly. It was as if I knew...
When she started mouthing that it was GOSH (Great Ormond Street Hospital), I just knew.

So I'll hopefully be going in on the 11th of September...which is my younger sisters 12th Birthday unfortunatly but at least I'll be there on the morning of her Birthday :)



So! FINGERS CROSSED!

EH x

The One Where I Turn 15!

2nd September. That is the day of my Birthday.

Today is the day of my 15th Birthday! YAY!

Woohoo!

So, I just got back from Brixton where I gorged myself on chocolate crepes and hot cocoa, before going to see 'Brave' (which is surprisingly excellent)

I look at Birthdays as the one day in the year totally focused on you (unless your sister has a major choking incident, which happened to me when I was about 4. I wasn't happy) and when you can pretty much get away with anything, just by turning on the charm, batting your eyelashes, putting on a lisp and making your bottom lip wobble like a jelly in an earthquake. 

BIRTHDAY GIRL: "But it's my birfday today"

MOTHER: "No.."

BG: "Pweaze mumma"

MOTHER: "Oh alright then.."

(Ka-ching!)

Obviously not everyone is suited to this level of deceit, however I am not above ANY level of deceit. Heeheehee...

Anyway, back to today..

I have received numerous gifts today, such as: 

1. A curling iron
2. A portable iPod speaker
3. Red lipstick
4. Gold eyeliner
5. 'Lush' products including beer flavored shampoo
6. A 'Keep Calm & Carry On' style picture with 'Keep Calm & Eat Cupcakes' on it instead
7. Earrings 
8. Money and Topshop Vouchers
9. AND MUCH MORE!

So, yeah. I received a pretty good loot today :)

Ciao!

EH x

  

The One With The Third Delay

You can probably tell by the title of this post what has happened.
Yep, that's right. We have been delayed YET again.
I'm going to go through each delay so that you can begin to understand my acute frustration and impatience.

Delay No. 1

I can't barely even remember the reason for this delay. I think the surgeon felt that my bones were too soft for surgery, which led to me going through (to this day) something called Bisphosphonate treatment.

There had been talk of an operation previously but I hadn't given it much thought as I was only in year 7 at the time. Anyway, up I was in my room creating a leaflet about 'My Day Out', for my French class, when my parents came in and told me that I was going in the following Monday. It was Saturday.
I didn't have any time to react and I was still unsure as to what was going to happen so I wasn't all that bothered. However, I remember being delighted that I didn't have to finish my homework and shoved it to the back of my desk drawer.

Along comes Monday and in we go to be told that the surgeon had rethought the surgery and felt that my bones were too squidgy to operate on. Boo-hoo, weep-weep. That was delay no. 1

Delay No. 2

This one was a little more traumatic.
I think it was about a week before I was due in when we got that news that the surgeon had broken his wrist on holiday. However, his wrist healed and surgery was to go ahead as per usual.

Then I caught a cold.

We still went in on the day that I was due to go in but were sent straight back home.
I was gutted but I wasn't really expecting surgery to go ahead anyway, so I spent the last couple of weeks in   bed with a bunged up nosed and a scratchy throat...

Then..

Delay No. 3

Last week, we called up to ward to confirm our coming in the following week and they seemed to have no idea that we were coming in, and apparently Mr Thompson (the surgeon) was still having difficulty with his wrist..OH, REALLY??!!

This one was the easiest delay though because it means that I can still be here on my sisters Birthday and I'm apparently top of the list.

So...I think I'm going in on the 11th but who knows.
It's my Birthday on Sunday and my party tomorrow so I've got that to look forward to :)

Ciao!
EH xx

The One With The First Post

 

 

 

I'm not too sure how I'm meant to start this kind of thing...this is my first blog and I don't know anything about this kinda stuff. I guess I'll just start with something about me (below).

 

I don't usually look like this.

 

I live with my family in South East London, my family being my mum, dad and sister Mary. I have a rare bone condition which means my bones are uber soft. It means that I missed practically the whole of Year 7 and most of 8. Even now I only go in after 10.00 in the morning and I get tired very easily. I'm going in for surgery on the 5th of September..a relief considering that my birthday is on the 2nd!

I'm a pretty quiet person. I like to read and watch films and I don't really get out that much although I have AMAZING friends and family who are incredibly supportive. Okay, I'm going to do a whole likes, dislikes kind of thing to help you get to know me a bit better:

LIKES:

• Hanging out with my friends and family
• Eating chocolate, pizza and pasta (especially spag bol)
• Watching films and reading books
• Lying in the Sun
• Art/English/Drama
• F.R.I.E.N.D.S (the t.v. show)

DISLIKES:

• Not having a book to read
• Getting hayfever
• Feeling self-conscious
• Feeling ill
• Slimy food

So that is pretty much all you need to know at the moment.

 If I don't catch up beforehand WISH ME LUCK IN MY OP!

EH